Rosemary Murray 29th June 2006
Disabled Children & Young
Peoples Participation Project
Children with complex medical needs have proven that they need health care provision in schools and at home. It has been our experience that in the most complex cases the child/ young person is inhibited form attending school because of inadequate health care service provision i.e. no medically trained personnel on site. Lack of adequate health care provision in the home has also impacted on the rights of the sibling to enjoy life (Articles 24 & 28)
Insufficient / Inadequate short breaks / respite provision. Young people are not given a choice about the type of respite they are given. This is due mainly to lack of service provision. Many siblings of children with complex needs would like to have a service that will enable their brother or sister to stay at home in their own surroundings and be cared for enabling the family to have a short break.
Disabled Children and Young People are inhibited from their right (Article15) to meet and make new friends and join organisations due to the Education and Youth Service Provision structures.
When leaving Childrens and going to Adult Services participants have found that they have lost essential services such therapy