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-- Yes/Maybe then does your child earn more than the SSI limit?

--- All YES/MAYBE answers then See a Special Needs Planning Specialist, Google: Special Needs Planning, Call your local special needs organization, Google: MetDESK®

---Then go below to: What needs to be done

What needs to be done:

* Prepare/review your (& spouse's) Will, Power of Attorney, and Medical Directive

* Consider a Special Needs Trust

* Prepare a Letter of Intent (also called a "Life Care Plan") - this details directions for daily routines and needs

* Review your (& spouse's) long-term care plan

* Review/update all beneficiary designations

* Notify family and other interested parties

For more information in Pennsylvania, contact your local County Assistance Office or online at www.compass.state.pa.us.  

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Appendix D: Healthy & Ready to Work National Center www.hrtw.org

Public & Private Insurance Plans: Understanding the Options for Youth with

Special Health Care Needs (YSHCN)

For more information about the Healthy & Ready to Work National Center, please see the following website: http://www.hrtw.org/healthcare/hlth_ins.html  

The following is for PA residents. Here is what we know:

* N0 Health Insurance -Two out of five college graduates and one-half of high school graduates who do not go on to college will experience a time without health insurance in the first year after graduation (Commonwealth Fund 2003)

* Dropped from Health Insurance -Youth are often dropped from their parent’s policies or public insurance programs at age 19, or when they graduate from college and struggle to find jobs with health benefits. Youth are far more likely to be uninsured than older adults: 4 of 10 youth between the ages of 19 and 29 can expect to be uninsured at sometime during the year--twice the rate of adults ages 30 to 64 (Commonwealth Fund 2003)

* Barriers to Getting and Keeping Health Insurance -“Americans with disabilities face a number of distinct barriers in obtaining, maintaining, and using health insurance and in accessing and using health care services. At the same time, Americans with disabilities also confront the barriers, problems, and frustrations with which most Americans routinely struggle in the insurance and health care systems" (National Council on Disability 2002 Annual National

Disability Policy: A Progress Report)

Public Health Insurance: Changes after Reaching Majority Age

Maintain Medicaid

* Passed SSI Redetermination - continue benefits

* Emancipated Minor - by marriage or court decision may qualify or continue Medicaid due to income or disability status

Dropped from Medicaid

* Former childhood SSI recipient at age 18 did not qualify under SSI redetermination and loses benefits (income too high or does not meet disability criteria)

Not Approved - Section 301: Provision to Continue Receiving SSI Benefits

Individuals found ineligible during SSI redetermination may continue to receive SSI benefits IF they began receiving state vocational rehabilitation agency

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