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* Coordination of care

What does it Mean for Youth

With health care services for adolescents who have special needs, the focus is on the following:

* Offering a comprehensive approach to providing adolescent health care services * Increasing access to health care services for adolescents, including the documentation of health needs

* Promoting health and mental well being as part of a successful transition from youth to adulthood

* Reducing health disparities among adolescents

* Finding connections to other medical and non-medical community resources

* Providing an environment of trust and mutual responsibility

* Identifying and facilitating transition in the myriad of areas where change is required

What can Families and Youth D0

* Contact the PAAAP or the PAFP to see if there is a medical home practice near you

*Talk with your doctors to see if they are connected to the PAAAP or PAFP and are they interested in participating in the Medical Home Projects

* You or your doctors may contact the above programs

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This document, the core committee and the state wide efforts have been encouraged and supported by The Pennsylvania Department of Health as part of the PA MOU (Memorandum Of Understanding) State Transition Leadership Team. This team provides the spring broad for cross agency, community, and family collaboration.

The Concern: that youth are leaving school to discover they have no health insurance or doctor and difficulty obtaining medications and treatments.

The Population: youth with complex medical conditions who are working with multiple government and private agencies.

The Goal: to provide a checklist, resources, and steps to assist youth and families to make a successful transition to adult living that includes health and health care.

The Disparity: people with disabilities are truly a minority population with disparities in obtaining health care due to issues of access, provider availability, income, discrimination, and communication

The History: this effort began in September 2003, in SW Pennsylvania and has grown to involve statewide and national interest

This effort has been facilitated by a core committee:

* Patti Agosti, Parent

* Susanne Durler, Parent

* Carol J. Gettemy, RN, BSN, Special Health Care Needs Consultant PA DOH

* Sharon Gretz Systems of Care Coordinator Special Kids Network

* Larry Klinger Assistant Director of Special Projects Allegheny Intermediate Unit (AIU)

* Joy Smith Work Incentives Coordinator AHEDD

* Michael Stoehr Education Consultant, PATTAN Pittsburgh office Member of PA MOU

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