X hits on this document

PDF document

DSD Debates: Social Movement Organizations’ Framing Disputes Surrounding the Term ‘Disor... - page 12 / 21

59 views

0 shares

0 downloads

0 comments

12 / 21

2008; 47), and “Disorder of Sex Development explains a child’s condition with neutral medical terms” (ISNA 2008; 69). ‘DSD’ is framed as a term that “labels a medical condition, not an identity” (ISNA 2008; 46). Additionally, it is stated, “‘DSD’ is a diagnosis, therefore knowledge from all medical fields apply” (ISNA 2008; 46). The terminology was brought into medical practice (to some degree) through the ‘Consensus Statement’ that resulted from the Chicago Conference organized by ISNA/Accord. ISNA/Accord is now focusing heavily on the promotion of the Consensus Statement’s implementation. An excerpt reads, “Since no institution has yet to fully implement the new standard of care it falls short of its aim to positively affect the lives of people with DSD and their families” (Accord Alliance). ISNA/Accord’s collaboration with members

of the them

medical community and desire to improve implementation have led

to

abandon

the

‘intersex’

language

altogether.

ISNA/Accord

has

used

‘DSD’

exclusively two target

(instead groups:

of the previous ‘intersex’) The Clinical Guidelines

in two main texts for Management

it has produced for its of Disorders of Sex

Development in Childhood ISNA/Accord indicate that

and the Handbook for Parents4. These they have gained access and influence

activities pursued by in the medical realm

and are primarily concerned with reshaping medical approaches

parents.

‘DSD’

was

introduced

into

the

medical

sphere

to intersex and informing through ISNA/Accord’s

collaboration with medical practitioners in an attempt to focus more explicitly on

health

concerns. These

actions

have,

AISSGUK sees

‘DSD’

as a

however, created conflicts with step forward but nonetheless

the other groups.

problematic.

The

group

proposes

the

adoption

of

another

term

and

the

use

of

a

patient-centered

model

of

care.

An excerpt from the AISSGUK site seems a significant advance on what

reads, “The has hitherto

overall structure of the scheme been available” (AISSG 2006).

[DSD] There

are, however, also critiques presented. ‘disorder’ is bad news” (AISSG 2006),

Another excerpt reads, “The choice of the term adding that “the term doesn’t seem a very good fit

4 The Clinical Guidelines for Management of Disorders of Sex Development in Childhood and the Handbook for Parents can be found at: http://www.dsdguidelines.org/.

71

Document info
Document views59
Page views59
Page last viewedSat Dec 10 17:01:07 UTC 2016
Pages21
Paragraphs655
Words6437

Comments