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What is the role of Māori EC members? What are the issues for Māori? What should a Māori ethics ... - page 11 / 32

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TUMANA RESEARCH

Role of Māori EC members Pū Tai Ora discussion themes 2005

Māori members role

accountability to whānau/hapū/iwi/Māori collectives

development of knowledge-base/education/training

protection/guardianship/kaitiakitanga

quality of consultation/representation

need for consensus/consistency

no frameworks/models for decision-making on Māori ethical issues

concerns about tissue/gene banking studies

systems for auditing/monitoring/tracking – where/when/why/who?

guidelines/protocols/methods

storage/access/return/disposal – national/international

accreditation/registration of trials/banks/facilities

information about Māori participation/use

need for more information about

NZ ethics system – stakeholders/decision-makers/networks/relationships eg SCOTT/GTAC/DSMB/NEAC

international collaborations/systems

Mataatua Declaration (other work by Māori/indigenous groups)

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