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NIH-wide data repository and user center go live

“It is so great that we can expand horizons with new datasets and at the same time protect the privacy of our hu- man subjects,” said Dr. Michael Gottes- man, NIH deputy director of intramural research, at the Biomedical Translational Research Information System go-live event on July 30.

an investigator’s patients with a lab value over a certain amount. (5) Create subsets of protocol subjects for retrieving detailed data sets.

The day also marked the opening of the BTRIS User-Support Center in the Hat- field Building’s 4-2480 (to the right of the Medical Board Room). At the center, BTRIS

staff will provide walk-in support for users from 8:30 am to 5:00 pm, Monday through Friday, through October 30. The team also provides self-paced, computer- based training modules at http://btris. nih.gov/intranet.

The launch of the NIH-wide research data repository allows principal investigators with active protocols to view their patients’ identified data from the Clinical Center’s Clinical Research Information System, the Clinical Research Informa- tion Management System of NIAID, and the NIAAA database. In September NIH researchers will be able to access de-identi- fied patient data from the same systems.

“I’ve been so fortunate to work with these great folks to get this built,” said Dr. Jim Cimino, speaking to his team. They put together the top five uses of BTRIS: (1) Create an IRB Inclusion Enrollment Report in seconds. (2) Search across one protocol or multiple protocols for demographic data. (3) Tell an investigator all the patients on his/her protocol that receive a particular drug. (4) Find all

Kicking things off on July 30 were (from left) Elaine Ayres, deputy chief of the CC Laboratory for Informatics Devel- opment; Dr. Jack Jones, NIH Chief Information Officer; Dr. Jim Cimino, chief of the CC Laboratory for Informatics Development and BTRIS program director; and Gottesman.

NIH employee shows book art

Judith Folkenberg, a writer for the National Library of Medicine, is showing off another kind of her art in an exhibition outside Clinical Center Admissions. Folkenberg is a book artist—“not only someone who makes books in the conventional sense, photo albums, journals or notebooks with say, decorative or unique covers, but also uses or adapts binding techniques from other countries, and from past centuries,” she described in her artist’s statement.

“A book artist may come up with new forms of binding or cohesion and may also use materials not normally associated with books, such as bark, plywood, found objects, and metal.”

Folkenberg has worked with the NLM for 10 years and has shown her art work at the Strathmore in Bethesda, the Arts Guild of Sonoma in Calif., and Pyramid Atlantic’s Book Arts Fair at the Corcoran Gallery of Art in DC. The CC exhibit will run through August 28 and includes the work at right with book covers made from wine crates and pages made from old calendars, paper bags, pages torn from existing books, and blank papers.

6 Clinical Center news August 2009

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