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Implementing Recovery-based Care: Tangible Guidance for SMHAs - page 33 / 44





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NASMHPD/NTAC e-Report on Recovery – Fall 2004

self-education. What is recovery? What is recovery-based care? Start this process by inviting people into hospitals and clinics to tell their own recovery stories as people with lived experience, and to convey what works and doesn’t work. Another way would be to host short, on-site, mini-recovery conferences on topics selected by persons with lived experience: patients, clients, consumers. Another idea is to become involved through their local peer-review board, in order to connect their local board to efforts such as the Annapolis Coalition on Behavioral Health Workforce Competencies and their efforts. A sub-item on that would be to support the efforts of coalition groups such as the Annapolis group to develop across discipline and across provider competencies in order to ensure that recovery-based services are being delivered. Another way is to apply for federal, state, or private grants to provide recovery-based education and program development.  

Knight: There are four rehabilitation or recovery packages for the workforce. I agree with Pat Deegan that recovery is the lived experience of rehabilitation. I think that the skills training approach and the strength-based approach are what’s needed, rather than the “psychology of adjustment” approach. The psychology of adjustment attempts to adjust you to a baseline that is usually your lowest functioning level with a mental illness. Everything else you attempt to do is seen as delusional. A psychology of respect would be based on strengths and teaching skills, rather than trying to adjust you to your mental illness. The packages are 1) from University of Kansas – a strengths-based case management approach, which has recently been thoroughly updated by Priscilla Ridgway in a book called Pathways to Recovery; 2) Bob Lieberman of UCLA [the Clinical Research Center for Schizophrenia and Psychiatric Rehabilitation] has a set of skills packages that is very good; 3) Eli Lily has the Team Solutions rehabilitation package [in conjunction with the University of Medicine and Dentistry of New Jersey (UMDNJ)]; and of course there is 4) the Boston University technology—probably the most extensive of the technologies. They recently came out with a package of 68 skills [Practitioner Tools for Achieving Valued Roles (Compendium Version)] that can help people regain the skills they’ve lost during institutionalization, either in the community or in the hospital. Institutionalization “de-skills” people. It’s a result of being institutionalized and having things done for you, and being repeatedly told that you have to adjust to a situation where you can’t expect anything out of life, a.k.a. the psychology of adjustment. You can’t expect to have normal social relationships, jobs, or a car. These four rehabilitation packages are all out, they are available for purchase, and you can get some training on them.

2) Can you provide some detail on how consumer/survivors can help mental health professionals facilitate the system’s transformation to recovery-based care?

Deegan: Nothing about us without us. We want to be involved at every level of decision making, we don’t want to be just relegated to an advisory board. Also, we want to be represented in large enough numbers that reflect the diversity of opinion within our community. Systems need to work with consumers to see how health systems can support resilience in all consumer/survivors rather than treating deficits. The workforce should learn that persons with disabilities do not have special needs. I have the same needs as you. My needs are for community, companionship, decent, affordable housing, the right

NASMHPD/NTAC e-Report on Recovery – Fall 2004

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