From January through September of 2007, the Parent Navigator had contact with 61 families located in 24 communities throughout the State; many of these families reside in very rural/remote locations. The Parent Navigator will work with the EHDI Program Manager and EHDI Advisory Committee to identify and facilitate opportunities for parent to parent support in Alaska.
The focus of this project is to ensure that after newborn hearing screening, all infants receive timely clinical follow-up, referral, diagnosis and intervention and parents are informed decision makers throughout this process. (Healthy People 2010 Goal One: Improve Access to Comprehensive, High-Quality Health Care Services, 2000.) Components of the intended project include: (1) identify children lost to follow-up or lost to documentation through analysis of the data entered in the State’s EHDI database, (2) ensure audiological evaluation by three months of age, (3) link to a medical home, (4) enrollment in treatment and early intervention services by six months of age, (5) offer family support services to all families of infants/children with a hearing loss and, (6) establish a system of coordinated services including the child’s medical home, family support services, and state and community-based resources in a culturally and linguistically competent manner. (Healthy People 2010 Goal Eleven: Use Communication Strategies to Improve Health, 2000.)
PROJECT METHODOLOGY/GOALS AND OBJECTIVES
Goal 1: To identify children lost to follow-up as indicated by the State EHDI database and develop a system to track these children to ensure they are rescreened and referred for timely diagnostic evaluation, treatment, and early intervention services.
1.1 By the end of 2008, the EHDI Program will conduct focused database training with all the birthing facilities and public health centers with an emphasis on consistent and accurate data entry.
1.2 By the end of 2008, the EHDI Program will conduct focused database training for audiologists with an emphasis on consistent and accurate data entry of the audiological evaluation and diagnostic process.