1.3 By the end of 2008, the EHDI Program will develop a procedure for ongoing internal surveillance of children lost to follow-up or who missed their newborn screen.
1.4. By the end of 2008, the EHDI Program will develop a Memorandum of Agreement (MOA) with the Early Intervention/Infant Learning Program (EI/ILP) to match children identified in the EI/ILP database with children in the State EHDI database.
1.5By the end of 2008, the EHDI Program will develop a system for matching the Newborn Metabolic Screening entries with the Newborn Hearing Screening entries to identify children who missed their newborn hearing screen.
Consistent and accurate data enhances the capacity of the State EHDI Program to accurately follow the infant’s journey and analyze if the process is meeting the National 1-3-6 goals. Through analysis of the database for consistent data entry, the EHDI staff will take a proactive approach to identifying which children are lost to follow-up versus lost to documentation. As data is entered into a web-based data system at twenty-one birthing hospitals and eight public health centers throughout Alaska, it is essential to have a consistent system for data entry. High staff turnover throughout the State requires ongoing contact on the part of the EHDI Manager with hearing screeners. This goal of consistent and accurate data entry -- both for initial screening and rescreening results --will be achieved through face to face training, quarterly data teleconferences, and quarterly practice profile letters. The EHDI Program will continue to hold trainings on data entry for new hearing screeners as needed.
To achieve greater consistency and accuracy in data entry, advanced training with on-site technical assistance from OZ, will be held in Anchorage for all birthing hospitals and public health nursing centers that provide hearing screens. In addition, the EHDI Program Manager will conduct site visits in Bethel, Fairbanks and Southeast Alaska, and other locations as necessary, to meet with hearing screeners and other members of the EHDI system ( i.e. public health nursing, primary care providers, audiology, and early intervention staff) to solve data entry and referral issues.
The State EHDI Program will continue to hold quarterly data teleconferences to reinforce information presented at the database training and to address issues raised by hearing screeners.