The Intervention Task Force, a subcommittee of the EHDI Advisory Committee, identified will develop a communication protocol between parents and referral sources. This protocol will ensure that parents are kept in the loop at all times and communication with all referral sources is up to date. The EHDI program promotes parents as decision makers in their child’s care. Communication with referral sources is one of the keys of success to achieving a family centered system of care. The Intervention Task Force will present the protocol to the EHDI Advisory Committee for adoption by all participants. The EHDI Advisory Committee will continue to hold meetings three times a year to evaluate the communications protocol and provide feedback on the process established.
The effectiveness of the communication protocol will be measured matching the fax-back system with primary care providers with data in the EHDI database.
The protocol will be presented at Grand Rounds by the AAP Chapter Champion to emphasize the role of the medical home in the EHDI process. In addition to the AAP Chapter Champion, the EHDI Advisory Committee includes the following members: parents, audiologists, hospital birth screeners, Early Intervention/Part C Program Manager; speech language therapists, educators, primary care providers, public health nurses and otolaryngologists. All EHDI members will be encouraged to utilize the protocol for a seamless referral system.
Goal 3: Enhance family support to families of children requiring diagnosis and intervention services by assisting their navigation through the EHDI system
3.1By the end of 2008, the EHDI Program will promote the role of the parent navigator as a support to parents throughout the EHDI process
3.2By beginning of 2009, the EHDI Program will identify barriers to parent support and methods by which parents prefer to receive support and information.
3.3By 2010, the EHDI Program will collaborate with the Stone Soup Group to establish a database for the purposes of parent to parent match
The EHDI Program implemented a contract for parent navigation services with the Stone Soup Group in November 2006. The Stone Soup Group is a parent organization that supports