The EHDI Program Manager will continue to conduct site visits with the parent navigator throughout the State to promote the role of parent navigation with birth screeners, early intervention, public health nurses and primary care providers. In addition the parent navigator will travel with the Assistive Technology for Alaskans (ATLA) to sites in various regions of the state. ATLA will have demonstration sites where parents and providers can view and borrow assistive technology for children who are hard of hearing or deaf. This is another opportunity for the parent navigator to meet parents and develop a parent network. Focus groups will be held to identify how parents would like to receive information and support.
As the Parent Navigator increases contact with families these contacts, with parental consent, will be entered in a database for the purposes of parent to parent match. Parent contacts will also be matched with the EHDI database for completeness of data information as a quality assurance measure. A survey will be developed to assess the usefulness of the parent matching service.
Goal 4: To identify infants/children with high risk factors, late onset or progressive hearing loss to prevent loss to follow-up.
4.1By the end of 2008, the EHDI Intervention Task Force on Late Onset/Progressive Hearing Loss, will modify the Alaska EHDI Protocol in accordance with the 2007 Joint Commission on Infant Hearing (JCIH) Guidelines.
4.2By 2009, the EHDI Program will establish a process for integrating children identified late with hearing loss into the EHDI data system.
4.3By 2009, the EHDI Program will establish a process to integrate children with late onset hearing loss enrolled in EI/ILP and hearing resources into the EHDI system.
4.4By 2009, the EHDI Program will provide ongoing support to Early Headstart Programs enrolled in the Early Childhood Hearing Outreach (ECHO) Project to identify and report children with high risk factors that may be lost to follow-up.
4.4By 2010, the EHDI Program will design a pilot project in the Yukon Kuskokwim (YK) Delta region to screen children at risk for hearing loss.