Evaluation of progress on meeting the goals and objectives for this grant will be based on the improvement made in reaching the National EHDI 1-3-6 Goals by analysis of: 1) data entered into the database; 2) satisfaction of families working through the diagnostic, treatment and intervention process as evidenced by surveys, and 3) involving new partners to collaborate with the State EHDI Program.
The EHDI Program is in the Children’s Health Unit within the Section of Women’s, Children’s, and Family Health (the State’s Title V and Children with Special Health Care Needs Agency) whose mission is to promote optimum health outcomes for all Alaskans. This section is one of nine sections in the Division of Public Health (DPH) which resides in the Department of Health and Social Services (HSS). The mission for the DHSS and DPH is “To promote and protect the health and well being of Alaskans”.
As detailed in the attached organization chart, the EHDI Program is managed by a Public Health Specialist II with support from an Admin Clerk III. This year a Health Program Associate will be added to provide more advanced support and to aid in the data analysis from the EHDI database. The Children’s Health Unit is managed by a Health Program Manager III who manages the Newborn Metabolic Screening (NBMS) Program and oversees the managers of the EHDI Program, and the State sponsored Genetics Clinics. The co-location of these programs in the same unit ensures the success of the EHDI/NBMS data integration project and the ability to track those infants diagnosed with a hearing loss receiving a genetics evaluation. These positions together form a cohesive team committed to working towards the goals as outlined in this application.
Another unit within the Section of Women’s, Children’s, and Family Health is the Maternal Child Health (MCH) Epidemiology Unit which analyzes programmatic data and produces MCH data books. Recent publications include the “2003 Alaska MCH Data Book”, the “2004 PRAMS Edition”, and the “2005 Birth Defects Edition”. Future publications will contain data analyzed