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Recommendations, Actions and Timescales for Strategy Implementation

Recommendation 1 :  The vision for the future development of supportive and palliative care services and the underpinning set of principles are discussed and endorsed by all partner organisations.

Action

Lead

Timescale

Endorsement by Commissioner, NHS Trusts, LA and Voluntary Sector organisations.

LSG

April  2007

Effective engagement of local people and their families / carers

Recommendation 2 : Develop further mechanisms, which should be in place to ensure views of patients, and carers are taken into account in developing and evaluating supportive and palliative care services.

Action

Lead

Timescale

Development of a Service User Strategy to :

o

ensure the views of patients and carers are routinely sought and acted on when developing & improving supportive & palliative care services.

o

devise systems to support patients and carers participating in their own care, featuring a range of informal support opportunities such as self-help and peer support schemes in the community.

Ensure appropriate linkages are made with other existing user and carer processes e.g. Patient Advisory Liaison Services, strategy, and existing disease-based support groups (diabetes, coronary artery disease, dementia, etc, as well as patient forums) to enable a more accurate assessment of the increasing supportive and palliative care needs within the local community.

Design engagement processes around local needs, which reflect the diversity of the local population in terms of cultural, gender, disability, sexuality, and people who have additional communication needs.

Work with the current resources available to enhance the development of user and carer engagement processes e.g. Cancer & Supportive & Palliative Care CNSs, the 5 (carer specialist) social workers, regeneration initiatives, and Carers Grant.

Utilise existing independent and voluntary sector support agencies, e.g. advocacy services and community liaison workers, to develop the appropriate engagement processes for difficult to reach groups in the local population.

Identify systematic collection and record of the views of people and their families/carers on supportive/palliative care services. Use of the current assessment processes and patient satisfaction questionnaires, e.g. Single Assessment Process (SAP), Person Centred Planning (PCP) and Care Programmed Approach (CPA).

User/Carer Sub-Group

User/Carer Involvement Lead/Local Implementation Officer (LIO)

User/Carer Involvement Lead/Lead Cancer Nurse/LIO

User/Carer Involvement Lead/Lead Cancer Nurse/LIO

User/Carer Involvement Lead/Lead Cancer Nurse

User/Carer Involvement Lead/Lead Cancer Nurse

User/Carer Involvement Lead/Lead Cancer Nurse

November  2007

June  2007

March 2008

March 2008

March 2008

March 2008

39

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